Dementia Finding Its Voice
For many decades the needs of people with dementia such as Alzheimer's disease had an institution framework. Care was evaluated by 'professionals' and services delivery was paternalistic. The views of people with Alzheimer's disease and other forms of dementia were rarely consulted let alone actively sought in service provision.
Times have thankfully have changed, in some areas faster than others. Enlightened health care has to consult its service users and dementia is finding its voice.
Research by Keady and Gillard in 1999 found that people with Alzheimer's disease wanted a number of things when they found out that they had the disease. They want:
Article Source Includes; Keady,J. and Gillard, J. 1999 The early Experience of Alzheimer's Disease: Implications for partnership and practice, in T. Adams and C Clark (eds) Alzheimer's Pathways to the Person.Balliere Tindall.