New Beginnings
Tuesday April 21, 2009
First of all, I want to apologize to everyone who reads this site for not posting in awhile. The last several weeks have been extremely busy as I made preparations to move across the country. Add to that some interesting challenges getting hooked up to the Internet again and it made it quite difficult to keep up with my About.com responsibilities. But I made the cross-country trek safe and sound and am getting back in the swing of things!
As always, Alzheimer's disease has been in the news quite a bit over the past several weeks. I'll be catching you up on the latest developments in the near future and adding new content every week. But before I start building momentum again, I have a question for you: What kinds of things do you want to read and learn about Alzheimer's disease? Are there specific questions to which you have not been able to find answers on this website? Please share your ideas and requests with me, and I'll do the best I can to gear my writing to your needs and concerns.
Thanks so much in advance for your great ideas.
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Comments
I’d like to read about very early testing, and early interventions. My husband’s family on his father’s side has a 100% rate of developing Alzheimer’s. He and I have both noticed signs, but yet, not to the point where he would fail a cognitive test–especially since some days are good and some are not good. How long to wait before intervention? Isn’t the damage already beginning to occur? If you can provide research on those topics, that would be great!
I would like to know more about the moving house of an alzheimers patient. My mom moved away from me to CT near my brother, after early diagnoses. she was diagnosed a year ago. she keeps saying she wants to come back to JHB all the time.she has been in CT for 7 mths now. what are the implications of moving them at late stage. she is confused, but not incontinent. still able to go out with the company of nurse.
I’ve been hearing some interesting facts about this new experimental drug called CPHPC.
I can’t find much about it on the internet and the medical libraries, so maybe you can help me. I would like to know the updates on clinical trials, because we really want to participate!
Hello mam
i am doing study on alzheimer’s disease.i have one problem with it i dont find legend of its receptor.so please help me out please mail me.
Thanks
I would like to see information about other conditions or problems that Alzheimer’s patients usually encounter. For example, falling asleep at random times and urinary incontinence. Why do they occur? How do we treat them?
The area that my mom has been more affected with Alzheimers is numerical - she can’t comprehend time anymore, nor numbers in a checkbook. I have been taking care of her financial needs and have subscribed to a service that initiates reminder calls for meal times (she’s in an independent apt.). Are there ways to assist her with keeping track of upcoming events without stressing her out?
I love to receive your emails. My mother has ALZ and has just moved to a very nice Assisted Living in Chattanooga, TN. We are blessed! Topics of interest would be Surgery for the ALZ patient, anesthesia, bladder prolapse. Thank you. Yvonne Elliott, Murfreesboro, TN
It has been impossible for me to find a forum or support group for early diagnosis (not early onset.) Everything (understandably) is for caregivers. I have not found a place where I can vent or compare notes.
My husband is at home with me, but recently he got so lost that the police had to find him. A couple of friends mentioned getting an electronic location device for him. What can you tell me about those? I know institutions use them, but are they practical for those at home?
Most of the questions I see here can be answered by calling the Alzheimer Association’s Helpline at 800-272-3900. It’s “open” 24 hours a day, 7 days a week and uses a translation service that allows the clinicians there to work with 140 different languages. If the questions would be better answered by a more local resource, they’ll make sure the local chapter gets involved. I work for the Massachusetts chapter, and although each chapter is a little different many offer a version of what we call Care Consultation here, a free service where families call to have us help them put together a “game plan” that identifies local resources and how to use them. We then stay in touch with the family thoughout the course of the disease to help them stay on track. The 800# can put you in touch with your local chapter if you don’t know how to find them.